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Elderly Care

FIGHTING FOR DIGNITY: A FILM ON INJURIOUS AND FATAL RESIDENT-TO-RESIDENT INCIDENTS IN LONG-TERM CARE HOMES

"The phenomenon of resident-to-resident incidents is now recognized as an international public health problem." - From the film

A large number of injurious resident-to-resident incidents in long-term care settings are not recognized, reported, nor prevented. Through the graphic and deeply painful experiences of three families whose vulnerable loved ones were either physically or sexually harmed, this powerful 20-minute film encourages care providers to improve care practices that would help prevent such episodes.

As it sheds light on the under-studied and under-recognized phenomenon of injurious and deadly resident-to-resident incidents, the film also emphasizes the need to understand that behavioral expressions labelled as "aggressive" in the context of dementia, typically occur when the "fighting" resident's own emotional and physical needs are not being met.

Fighting for Dignity provides a much-needed framework in which to:

1. recognize the potential consequences of serious incidents on residents (psychological distress, falls, physical injury, and death), and the profound emotional impact on their family members,

2. improve the safety of vulnerable and frail elders by recognizing the emotional cues and situational frustrations that can help prevent harmful incidents, and

3. offer a professional and timely response to harmful incidents, including the provision of adequate emotional support to family members.

The film is accompanied by an informative 76-slide PowerPoint that identifies:

Unmet human needs that often underscore behavioral expressions in persons living with dementia

The definition and prevalence of Distressing and Harmful Resident-to-Resident Interactions

Contributing factors, causes, and situational triggers

The effect of these episodes on residents and families

Persistent barriers for change in addressing these episodes

A series of psychosocial strategies for prevention and de-escalation

It also pinpoints the critical role of adequate staffing levels, specialized dementia-specific staff training programs, and the importance of personally meaningful engagement of residents living with dementia. Finally, it describes screening and assessment instruments that should be used as an integral part of all prevention efforts aimed at reducing these incidents and keeping residents with dementia safe.

A must-see training resource for all health care professionals, managers, administrators, and owners of nursing homes and assisted living residences, as well as, culture change advocates and policymakers.

DVD / 2020 / 20 minutes

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IN OUR RIGHT MIND: ALZHEIMER'S AND OTHER DEMENTIAS' IMPACT IN COMMUNITIES OF COLOR

By Renee Chenault Fattah

This film enlightens and empowers as it takes an intimate look at the impact of Alzheimer's and dementia in communities of color, why disparities often exist in these communities, and what can be done right now to change the course of the disease. Through the powerful stories of several families (from a millennial caregiver to a family dealing with both parents diagnosed with Alzheimer's), the film takes an honest look at the personal, social, economic, and relational challenges to the caregivers and the family at large. (It also includes the story of reporter and Alzheimer's advocate, Orien Reid Nix, who was later diagnosed with Alzheimer's herself.)

The film opens up a much-needed conversation on proactive lifestyle changes, technological advances, and the need to participate in clinical trials and various research programs. It also stresses the importance of Alzheimer's education, sharing lessons learned, and relying on the cultural bonds and family ties that have long sustained communities of color.

DVD / 2019 / 49 minutes

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TOO SOON TO FORGET: THE JOURNEY OF YOUNGER ONSET ALZHEIMER'S DISEASE

"You don't have to be old to hear the words, 'You have Alzheimer's'." - from the DVD

Living with Alzheimer's is a challenge - affecting the lives of everyone it touches. Imagine, however, the hardships of living with Alzheimer's in midlife. B. Smith, a supermodel, celebrity chef, and lifestyle maven, was diagnosed with younger onset Alzheimer's at the age of 62. Together with her husband, Dan Gasby, they host Too Soon to Forget. Through nine families, this revealing 2-DVD set explores the emotional experience of younger onset Alzheimer's - from the loneliness and isolation, to common adjustments, and finally to the healing power of community.

DVD 1 (Documentary plus two Supplemental Features) - 78 minutes

DVD 2 (Eleven Additional Supplemental Features) - 90 minutes

Comforting, empowering, and refreshingly honest, this package provides a wealth of timely information to help those diagnosed with early onset Alzheimer's (and their families) better understand and navigate this journey together. It also documents how communities can help create awareness and support to make life better for persons living with dementia.

DVD / 2018 / 168 minutes

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WILL POWER

The unforeseen legal and emotional challenges of elder caregiving (and end-of-life care) often tear families apart... How do you deal with it?

Will Power uses the filmmaker's personal experiences in saving his ancestral land to provide a powerful framework for action to prepare siblings and their parents for the emotional, financial, and legal challenges that age and death can bring on. It is usually difficult for families to gather and discuss issues related to elder care, estates, and finances, and Will Power provides an entertaining platform to spark much-needed discussions on these too often avoided topics. It is not only a "how to" guide, but more importantly, a "why to" guide that offers the tools and information needed to navigate and complete proper legal planning for seniors. Topics include: fiduciary responsibility, trusts vs. wills, power of attorney, health care proxy, living wills, sibling rivalry, and value and heritage of land.

Will Power's stunning visuals, combined with rich music and nostalgic imagery, weave a tapestry of sentiments relevant to every viewer's experience with family and youth, as well as, life and death. Ultimately, the film shows how strength through self-discovery, brings personal redemption, proving the power of one's own will.

DVD / 2018 / 53 minutes

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MY FATHER'S HOUSE: A JOURNEY OF LOVE AND MEMORY

By Hannah Reimann

Hannah Reimann's self-produced film, a love letter to her father, tells the story of her father, Dr. Peter Reimann and his trauma-related dementia, her sister Kim, their devoted Korean housekeeper, Mrs. Man Cho Lee, and herself. Their life in suburban New Jersey serves as the backdrop for a universal story about dementia, death and dying, albeit within the context of their unique personal experiences caring for Dr. Reimann in the last three years of his life.

My Father's House touches us in the rather deep places we don't often venture. The film allows caregivers to see that there are others going through similar circumstances and that they are not alone. It assures us that the path of caregiving, however painful and unpredictable, is a worthy one, one that redeems and one that rewards us with the silent, unforeseen promise of comfort and peace at the time of a loved one's death. My Father's House shows us that death is not something to be feared, but to be embraced in the context of a fatal illness, empowering both the living and the one who has passed.

DVD / 2017 / 28 minutes

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SEXUALITY, INTIMACY, AND DEMENTIA IN RESIDENTIAL CARE SETTINGS

This 5-chaptered DVD brings forth a thoughtful, much needed exploration of sexuality, intimacy, and dementia, and the complex issues that impact residents, family members, and care staff. Through five 15- to 20-minute videos, the DVD looks at the relevant concerns of intimacy and sexuality on quality of life, freedom to express sexuality, capacity to consent, resident protections, and potential legal ramifications. It also touches on the needs of LGBT residents, how to address resident-to-resident and resident-to-visitor encounters, and how to find workable solutions with the support of family members.

The 5-DVD Chapters cover:
Part 1: The Effects of Dementia on Intimacy and Sexuality
Part 2: Responding to Sexual Expressions
Part 3: Consensual Intimacy and Sexuality
Part 4: Spousal and Family Responses
Part 5: Non-consensual Intimacy and Sexuality

This DVD poses many relevant questions, and is designed to equip care staff with a well-rounded understanding of the sensitive issues concerning intimacy, sexuality, and the rights of persons with dementia, as well as, how to respond to expressions of sexuality in a manner that promotes both resident dignity and safety.

DVD / 2017 / 78 minutes

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THERE IS A PLACE

This inspiring new film takes us to a place...a place where the healing power of music transcends Alzheimer's, loneliness, and confusion to usher in a sense of happiness and belonging. The film follows singer-songwriter Lior Tsarfaty as he visits Alzheimer's care communities and engages the residents in music, song, and dance. "Your heart is a reminder that you are not alone," he tells one group, "You are connected to other hearts, and other hearts, and other hearts, and other hearts. And we are all beating together, just like a big, big drum." And the residents smile, and sing, and play instruments, and dance-and belong to that particular moment. Caregivers will be encouraged to boost the overall quality of life for persons living with Alzheimer's through the inclusive and engaging power of music and movement.

DVD / 2016 / 17 minutes

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"BOB, I'M REALLY BUSY": THE IMPACT OF IMPERSONAL CARE ON THE WELL-BEING OF PERSONS LIVING WITH DEMENTIA

Through five short trigger scenarios involving assistance for a person living with dementia, this DVD presents care situations that will open up discussion on how best to provide resident-specific support and assistance. Each brief scenario is designed to demonstrate the impact of a caregiver's tone, actions, and level of sensitivity to the resident's needs. This up-close-and-personal look at caregiving will give caregivers a chance to dissect and analyze how they provide care, and foster a deeper understanding of how to interact positively with persons living with dementia.

DVD / 2015 / 12 minutes

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BACKING OUT OF TIME

Over a three-year period, this intimate film balances the honest emotions and real concerns of five diverse families as they navigate a new and often sudden terrain — that of caregiving. From early uncertainties to the realities of daily care (emotional frustrations, financial obstacles, and lifestyle changes), the film captures these families in the throes of caregiving — laying bare both the rewards and the challenges. The film also shares insights from the persons living with dementia, as well as, the children and spouses who are impacted by changes to the family unit. Interspersed with information to better understand the symptoms and effects of Alzheimer's, and feedback from care professionals, this film is an upbeat look at the adjustments and compromises these families make as they learn how to care for their loved on with Alzheimer's.

A great film to share with professional caregivers, or anyone who is (or will be) caring for a loved one at home.

DVD / 2015 / 60 minutes

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FEED HER WHILE SHE WALKS

When a resident won't sit long enough to eat, or insists on leaving, or wanders into potentially unsafe areas - what do you do?

This 20-minute DVD will help. Using real people and real situations, it offers thought-provoking insights into wandering behavior, and shows effective examples of providing person-centered care to residents who wander or insist on leaving. It also shows how an interdisciplinary approach to understanding and adjusting care to each resident's specific needs can promote independence and safety, and identifies environmental cues that can help deter wandering into unsafe or private areas (such as, another resident's room).

Includes strategies for:

Working with residents who wander at night

Working with residents who keep leaving the building

Working with residents who move items or get into things

Caregivers will be inspired to find creative, flexible ways to redirect and engage persons who wander or want to leave.

DVD / 2014 / 20 minutes

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"I'LL BE THERE FOR YOU" - PROVIDING PERSON-CENTERED DEMENTIA CARE

By Jett Jousma

Learn how person-centered care can positiviely impact each day for persons with dementia...

This DVD shows how to make a hands-on shift to person-centered dementia care that engages the whole person and creates a support system based on each resident's needs and preferences.

From natural wake-ups to music therapy, the DVD looks at the benefits of involving residents in their care as much as possible, finding ways to help them to "continue" living life the way they prefer, and engaging them in personalized activities that boost self-esteem and interaction. It also empowers nursing assistants to act upon (and communicate to other team members) their first-hand knowledge of each resident to ensure a better understanding of their care needs.

DVD / 2013 / 28 minutes

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PERSON-CENTERED DEMENTIA CARE: STORIES AND EXAMPLES

"Who is this person - without dementia? If we can tap into who this person is, we can help their adjustment, and the process that they go through." - from the DVD

Through hands-on stories and examples, this chaptered DVD shows the positive impact of person-centered care. When caregivers meet persons with dementia "where they are" and find creative and engaging ways to connect with each individual, based on their needs and preferences, life is better for both residents and staff.

The DVD includes the case study of Elaine, a resident who, for extended periods of time, attempts to leave the facility and go home. By pinpointing the importance of knowing the resident, it shows how her "exit-seeking" behavior is addressed and managed in the context of who she is and what she needs at that particular time.

The DVD also shows how to make life richer for the residents who have dementia by

personalizing their dining experience

encouraging use of remaining abilities

engaging them in creative activities

DVD / 2013 / 29 minutes

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HE WOULDN'T TURN ME LOOSE: THE SEXUAL ASSAULT CASE OF 96-YEAR-OLD MISS MARY

This DVD presents the real-life case of 96-year-old Miss Mary, who was financially exploited and later, sexually assaulted by her grandson. Miss Mary had been living with her grandson and his wife for five years during which financial abuse took place. Then, one evening, when his wife was out, the grandson sexually abused Miss Mary for several hours, leaving her bruised from head to toe.

After the attack and hopitalization, Miss Mary was placed in a nursing home under the name "Jane Doe" for safety reasons. Miss Mary's family refused to believe her and refused to support her; her primary social interactions were with staff and resisdnts of the nursing home, and the advocates she met after the assault. However, Miss Mary retained her strength of character, and fully participated in the subsequent trial and prosecution of her grandson.

Through interviews with Miss Mary, various professionals involved in investigating and trying the case, and with victim advocates who helped Miss Mary, the DVD reveals some of the dynamics involved in this case, and how it was successfully brought to trial and prosecution.

DVD (Closed Captioned) / 2012 / 28 minutes

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MORE THAN WORDS: A NEW CULTURE OF CARE AND COMMUNICATION WITH PERSONS WHO HAVE DEMENTIA

This culture-changing DVD demonstrates (though real interactions) how person-centered care and knowledge of the resident can reduce dementia-related episodes, such as, sundowning and aggressive-protective reactions when bathing, and wanting to leave.

As it pinpoints the crucial role of the CAN as caregiver and friend, it also shows the importance of communicating directly, and creating a true "relationship" with persons with dementia. Caregivers will learn valuable tips to redirect and lessen anxieties for persons with dementia while preserving their personal autonomy and dignity.

The DVD covers:

Building and maintaining a relationship

Dealing with difficult situations

Communicating to show respect

Accepting their reality

Respecting the person's preferences

Encouraging use of remaining abilities

DVD / 2011 / 25 minutes

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INTO THE OTHER LANE: DRIVING AND DEMENTIA

This two-part DVD presents a compassionate, yet realistic portrait of the many issues faced by persons with dementia, (and their caregivers) when a decision has to be made about giving up driving.

Part One
Stories shows the real stories of five persons with dementia, and the impact that no longer being safe to drive makes on the autonomy and self-esteem of the person with dementia, as well as, the effects on family relationships and life styles. The stories are four to eleven minutes long, and put a human face on how it feels to be told that you can no longer drive, and how it feels to be a caregiver in this emotionally-charged process.

Part Two
Related Issues includes helpful insights from healthcare and driving safety professionals on how Alzheimer's affects driving ability, how to initiate the conversation about driving cessation, transportation options, and what healthcare specialists can do to help facilitate the situation for both the person with dementia and the caregiver.

DVD / 2010 / 56 minutes

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IS IT THE RIGHT TIME? THE NURSING HOME DECISION

This follow-up DVD to More Than a Thousand Tomorrows (the story of Betty and Everett Jordan's struggle with Alzheimer's Disease) deals with the tough decision of nursing home placement, and how the Jordan family struggled with that decision.

In this DVD, Is it the Right Time? The Nursing Home Decision, several of Everett and Betty's children participate in a social worker-facilitated discussion of how that decision was made and how the communication regarding the decision might have been better handled. Their frank and honest questions and answers shed light on the importance of keeping open the lines of family communication around the timing of this very emotional and difficult decision.

DVD / 2010 / 13 minutes

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