BT27560209
PARENTS' MOTTOES: DEATH IS AWAITING
The parents of baby girl, Chung Wing-kei, recall how they discovered that she has the rare Pompe's Disease and why they have decided to raise her like a normal child. A doctor explains what causes Pompe Disease, how it is diagnosed, what is the available treatment and the life expectancy of babies with this disease. As Wing-kei's medicine is expensive, shows her parents participating in a Hong Kong Mucopolysaccharidoses and Rare Genetic Diseases Mutual Aid Group demonstration to fight for government drug subsidies
DVD
30 minutes
2008
USD 500.00